Well, I think Friday's appt was the quickest ever. We were in and out within about 25 mins. She hadn't had a chance to view the EEG yet and she didn't take the time to load the MRI scans. She said she will look at them today and get back to me. She is anxious to see Connor next month and explore the TS issue further. She did decide to up Austin's Vigabatrin also. She feels that based on our experience with him and regardless of the EEG, that we should up the dose. Jeff and I are COMPLETELY FINE with that. Besides, I dreamt last night that he was having an EEG and there was spiking. Seeing as I RARELY remember my dreams, I am trusting this one.
Jeff and I went on a date Friday night and I got to sleep in on Saturday since the kids were having sleepovers. It was a nice start to a quiet weekend!
About Me
- JSmith5780
- I am a wife and mom of 3 little boys. My oldest is 6 and had Infantile Spasms and clonic seizures. His seizures are currently controlled by Vigabatrin, a non-FDA approved drug. My twins are 5. One is a typical, energetic little boy and the other has been diagnosed with Asperger's, an Autism Spectrum Disorder. This blog tells of our everyday lives and our struggles to get the best care and services for our boys. I also work full-time as a contract Materials Engineer.
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